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Welcome to the American PBC Association

What is PBC? 

Otherwise known as Primary Biliary Cholangitis or Cirrhosis,  is considered an incurable, autoimmune liver disease where over time an antibody created within the body attacks and destroys the bile ducts in the liver.  The most common symptom is fatigue, sometimes so severe as to cause sleep disturbances and depression.    "Fatigue is a symptom in up to 85 percent of PBC patients and affects their quality of life and limits their activities.  Fatigue can occur very early in the course of the disease and does not correlate with the severity as judged by laboratory tests or liver biopsy ".  This chronic inflammation eventually leads to scarring and  liver tissue death resulting in complete liver failure.   The only treatment for End Stage Liver Failure is Liver Transplantation. The cause and cure of PBC are still unknown. PBC is more prevalent in women 10 to 1, and is "not" a alcohol or drug  related disease.  The most common early symptoms are itching and fatigue.   Watch two teaching  videos  and learn about PBC.

What is Primary Biliary Cirrhosis?  Link to this great article from the American Liver Foundation

Early PBC Link to this article from James Neuberger, Consultant Physician,Queen Elizabeth Hospital, Birmingham.

PBC is a great article from Medicine.net.  Provides information about all aspects of PBC from diagnosis to management.

What is Primary Biliary Cirrhosis?  Read Howard J. Worman, MD from the Departments of Medicine and of Anatomy and Cell Biology
Columbia University College of Physicians & Surgeons
New York, New York.

Information on the PBC Fund the Cure Account at the American Liver Foundation.  All profits from the sale of the stickers on this website are donated to this account.

ALF 2006 PBC Research Grant Brochure

 Printable version

Support our efforts to fund research by supporting our site using the Goodsearch.com seach engine.  Just type in AmericanPBC into the charity you support and click verify.  Install the Goodsearch Toolbar for convenient use when surfing and supporting our Non Profit Corporation.

 

PBC in the News

Hollywood link gives PBC a face Read this uplifting story about the President of the American PBC Association and American Idol Contestant Jason Castro!

Dallas Morning News reporter shows compassion about PBC patient struggle.

Chapters of the ALF

The ASSIST ProgramSM, from Axcan PharmaTM, helps meet the needs of low income patients who lack insurance coverage. This program allows for a recurring 30-day supply of URSO ForteTM, URSO 250®,

 URSO Reimbursement Programs

1-866-292-2679

Watch some informative Videos about PBC from Axcan

Living with Primary Biliary Cirrhosis

Primary Biliary Cirrhosis (PBC)

Primary Biliary Cirrhosis- Health Encyclopedia and Reference

 Primary biliary cirrhosis: new perspectives in diagnosis and treatment -- Prince and Jones ...

Merek Manual  Online PBC

PBC New Options
by T. Sack, MD

 

Participate In PBC Research

Mayo Clinic Study

PBC Fatigue Study

UC Davis Study

Mason Combivir Study

Clinical Trial on ITCHING

ClinicalTrials.gov

Links to other PBC Sites

PBC Foundation, UK

Canadian PBC Society

The Fair Foundation

Links for Life

 

 

Liver Disease Research Programs

If you would like to order teaching brochures for PBC
Please contact Joan Gallagher by phone 800.223.0179.ext.224 or e-mail her at jgallagher@liverfoundtion.org


Joan Gallagher
Sr. Program Coordinator
American Liver Foundation
1425 Pompton Avenue
Cedar Grove, NJ 07009
973-256-2550 ext. 224
fax 973-256-3214
e-mail jgallagher@liverfoundation.org

 
Copyright (c) 2006 American PBC Association All Rights Reserved