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Welcome to our Nutrition Page.  Here you will discover the physics behind what PBC does to your digestive system. Learn what vitamins and minerals you need to supplement in PBC.

The Physics of Nutrition in PBC

By Mary Anne Simpson, ADN

One of the first questions asked by newly diagnosed PBC patients is what to do about their diet.  They want to know what to eat to help improve the condition and what not to eat that might aggravate the condition.  You must know how PBC effects the digestive system to understand the nutritional needs a PBC patient requires. 

In PBC the back up of bile from inflammation and scarring of the bile ducts causes decreased absorption of fat in the intestines due to diminished excretion of bile from the ducts.  

Ductopenia results when the bile ducts in the liver are destroyed, thwarting bile transport to the large bile duct of the intestine, thus causing the diminished secretion of bile into the small intestine.  Because of the decrease in bile secretion, absorption of fat and fat soluble vitamins is impeded.  The retention of bile in the liver literally burns the bile ducts and causes scarring. 

This causes a decrease in the amount of fat and fat soluble vitamins a PBC patient can absorb (A, D, E and K).  Some patients will lose weight and develop diarrhea before being diagnosed due to the inability to absorb fat.

Therefore taking a good multivitamin without iron is important to obtain as much nutrition as possible.   It makes sense to limit the amount of fat in the diet if you are having problems with fat absorption. So the statement that "we can't eat all the things we used to eat" is correct. PBC patients must limit fat, cholesterol, sugar and sodium. It's best to eat a moderate amount of protein and I feel Dr. Atkins diet would be overdoing it for a PBC liver with fat and cholesterol intake. In my humble opinion, the Atkins diet is not for anyone especially patients with PBC.  As far as alternative medicine, AKA herbs, toxic reactions have been reported with herbal supplements that were made in Asia.  A number of herbal supplements have been proven to be clearly toxic. These include germander chaparral, Kava, precursor androgens, and ephedra-containing products. Consult with your physician before taking any type of herbal supplement.

PBC patients need extra calcium because Vitamin D is a fat soluble
vitamin and we need Vita. D to absorb Calcium. Did you know that 10
minutes in the sun everyday gives you all the Vita. D you need. PBC patients  have trouble synthesizing the vitamin due to mal-absorption in the gut. That is why taking the drug URSO is important.  This drug assists with metabolizing fats and fat soluble vitamins to enhance a PBC patient's total nutritional status.  Many PBC patients have high cholesterol readings. Controlling the saturated fats and cholesterol of food in the diet can improve these values in some patients.

Personally I feel the best diet for PBC consists of  the adhering to the following guidelines:  a low fat, low salt, (in later stages PBC patients retain fluid), moderate HBV protein, limited sugar,  generous in whole grains (B Vitamin source), with  4-6 servings of vegetables or fruits daily and copious amounts of calcium rich foods every day.  Dr. Lewitz, PBC GI Specialist in San Antonio suggests patients take at least 1000mg of Calcium a day.  Dr. Lewitz advises that Calcium Citrate is better to take than oyster shell calcium as its absorbed better in the gut.  Also recommended is  500mg Vitamin D per day, 50,000U per day of Vitamin A and 800U per day of Vitamin E as these are  fat soluble. Don't overdo the vitamin A as it can be detrimental and cause blood abnormalities.  Some GI doctors will obtain baseline labs for the fat soluble vitamins and add supplementally as indicated.

Vitamin  K helps with blood clotting so keeping this at a normal level is important.   If you are having trouble with free bleeding (cuts bleed excessively, nosebleeds), tell your physician he may want to check your Vitamin K level.  (Bleeding from the stomach or rectum should be reported immediately as this is from another problem related to PBC and not within the scope of  this article.) Patients with low levels can be placed on Vitamin K injections to bring the value back to normal limits.  Since Vitamin D aids in Calcium absorption many PBC patients have low calcium levels and develop osteoporosis.  It's important to get a yearly Bone Scan to assess the condition of your bones. Medications such as Fosamax, will be ordered if osteoporosis is detected.  

Many dietitians feel that coffee, nuts, and other bile acid inducing foods should be avoided.  Theoretically this makes sense, if you eat foods that do not require as much bile to metabolize your liver won't work as hard trying to produce bile for digestion.  They suggest PBC patients drink 4-6 8oz glasses of water daily.  Remember the solution to pollution is dilution, keep your body well hydrated for the best health.

 

Wise Diets to Follow

Weight Watchers

American Diabetic Association

American Heart Association

Want a diet critiqued?  Go to http://www.webmd.com

Food Composition Sites

Food and Information Center

Federal Citizen Information Center

Public Health Library Berkeley

Nutrition Facts

How to read Food Label Nutrition Content

Medline

Other Nutrition Sites

Weight-Control Information Network

healthfinder logohealthfinder® — your guide to reliable health information, developed by the U.S. Department of Health and Human Services. Nutrition and Obesity Video Order Form

 

 


 

 

 

Quick Links to Nutrition Information

Fast Food Calorie Calculations

These sites calculate calories of many fast food items.  If you travel or are just really busy, check out this site before you buy your next meal.

http://www.fatcalories.com/

http://www.calorie-counters.net/

 

 
 Copyright © 2006 American PBC Association

Disclaimer:  The information found on this site MUST NOT be used as
medical advice or a substitute for your own health care provider. Always
consult a doctor before making any changes to your treatment plan.